The McComb County model for American Girl Dolls is open about her health.
14-year-old Elia Rorke has said that her illness has been diagnosed with very rare, it took almost two years for diagnosis.
"It seemed like a huge dream to me. I was so scared that soon I thought I could never skate again," she said.
The diagnosis of Elia Chronic Chronic Multi-Focal Osteomyelitis (CRMO), a potentially serious and unique form of bone disease that lasted longer. Doctors say that right now, there is no known cure.
"They describe us that there was probably an ear problem, or it was infected in the jaw, or it could be a tooth litter or something like that. So before we got the answer we went with about seven doctors," said Eli's mother, Lunda Rorke.
Despite the pain of the ability to skate and the chance to live a regular juvenile life, 14-year-old has tried to be positive.
"I can not stop him from skating and doing what I like."