"You do not see that you have dementia."
Robin Mayors and Bernese Mountain Dog, Brooklyn, Keith Barrett are a live picture of one of the lives of Orlyans' house in the middle of his wife for 15 years.
At the age of 59, she works full time in the company, who co-founded 20 years ago, who supported the disability among the six sons and five grandchildren, and enjoyed waiting for Sunshine in Florida.
But it is also the new Voice of the Amazon Society of Canada campaign, which has been reunited on Monday, to fight the old tendency of half-million Canadians with dementia.
It is in the true sense that they once believed that what people now say to them.
Two years ago, Bart was diagnosed with the rare young early dementia, Alzheimer's type, which is still in its infancy, "I do not feel like people feel."
"I was part of a stigma."
The name of the disease is limited to an octogenarian image, a nursing home bed, or locked ward so that they do not wander.
"It's a picture that came to my mind and it's wrong," said Barrett. "Through my own experiences, you can diagnose your 30, 40, and 50s. I think more people who can share their story, we can communicate and accept more of our society."
Barrett, who strongly opposed the invention of invisible technology, rigorous regularity and his wife – "My Rock" – it is an acknowledgment that he remembers when he accepts acceptance painfully.
"The one person I spoke to, the first words out of his mouth: & # 39; you're still driving? & # 39; Barrett said.
47-year-old Meyers said, "Take your time," put his hands on it.
He said that Keith really makes good decisions when he drives. "But people in me tell me, 'do you still drive it?' What do you mean? He is capable of making his decisions. It is impossible to understand that people have no idea that someone in their communities , In their lives and being able to stay alive.
"We understand people as well. The moment you diagnose, does not mean that you are the person who needs special care. The moment you are diagnosing, the moment I am doing, 'Whatever I did' To keep everything I have, I'm going to really work hard to keep all my skills, my abilities, for that can happen. '
Campaign – "Yes, I live with dementia. Help me understand." – It is a goal to change the attitude of the Alzheimer's Society, with the recent research that showed that one in four Canadians said that they would be shy or ashamed if they have dementia . One of the five accepted Dementia using abusive or tarnished language.
The real harm to patients and their families is that, according to Pauline Tordif, Alzheimer's Society of Canada's chief executive, who mistakenly talks about a mistake, the diagnosis can mean the end of a meaningful life, that means diagnosis can be dementia.
Those people may fear the symptoms of their own or loved ones, such as decrease in memory, decrease in judgment and logic or mood and behavior, and difficulties in detecting or explaining any reason to express themselves. So they did not get help from their help and treatment. While Alzheimer's disease is ultimately deadly, some types of dementia can be cured.
Once diagnosed, defenseless people can face defensiveness when ordering a coffee or taking a bit longer to remember their PIN – Barrett was screamed during an airport security check – which could still work and the activities that They are ashamed to be far away from what they can enjoy.
Or disgrace – "Why would she remember my children's names or not recognize me?" – Can keep friends away, leaving them socially different from dementia, which itself contributes significantly to cognitive impairment.
People with dementia sit on the Board of Directors of the Society and play an important role in educating the policy makers, because Barrett and Meyers attended a conference held by the Union Health Minister last spring to provide guidance on working on a new National Dementia strategy.
Tardef said, "In our communities people need more educated and more patient and understanding so that they can lead their full life and can not inactivate them untimely."
A campaign is also required to disclose the "uncomfortable" scale of "emergency" in health care, the federal government co-chaired the Ministry of Health Advisory Board on dementia after being committed to developing a long advocacy strategy.
While 564,000 Canadians live with some types of dementia, the number is expected to increase to 937,000 by 2031.
It is mostly because our society is getting older and we are living for a long time. While dementia is not a common part of aging, dementia is the number one risk factor for developing. Risk doubles every five years after the age of 65.
"The spread of dementia is rapidly expanding and our care partners in Canada have been badly resuscitated and raise many questions in the care of people living in Dementia," she said. "Alzheimer's Society is one of those players.
"We try to bestow our bets with the support of our donors, but we do not provide health care, so working with our provincial partners and hoping that now the national Dementia strategy is being created with the federal government, which we can take care of, and Dementia Support for people living with. "
Barrett's symptoms appeared the first one and a half years ago. Speaking off-the-cuff easily for decades without speaking, he started forgetting what he had said. She was changing things incorrectly and using the wrong word, instead of "stove" type "fridge".
Meyers recalls that Barrett would be angry that people told him that he had talked with them that he could not remember but was reluctant to bring him to the doctors and that he had dismissed tensions or changes in old age.
Meyers said, "I knew him really well." "I can see more than any other change. I could not continue to be as depressed as I was."
Meyers adopted it. Eventually, Barrett was diagnosed as a neuropsychologist, who performed cognitive tests because doctors did other blood work and MRI was to exclude other causes of memory memory.
In December 2016, it was diagnosed.
The couple started attending the Alzheimer's education sessions and started sharing news with her family, but Barrett admitted that she did not seem to be real.
"I still do not believe it," said Barrett. "I am 57 at that time. That was not true."
The message he heard was "going home and adjusting your work, stream your desire. There was a positive impetus that you can live by it."
Mayors also survived the impression that Barrett was advised to remove his life from wind and retire.
"I think we need to contradict exactly what," Mayer was the director of the health care organization, who works with senior people, many of them working with dementia. "Let's be positive. Let's live the best way we can."
Two years after that diagnosis, Barrett continues to go to the office every day, using co-workers, who oversee some of his work.
He says that the keys to living well with Dementia are continuously taught: It starts with the preparation in the morning and relies on its technology, in which iwatch, including the GPS and GPS while driving virtual virtual assistant Alexa.
They take note, discusses that Merrars asks for a Thursday night's plan to follow the work conversation with a short email instead of telling the husband, for example, he sends a digital invitation so that he will be on his calendar.
Meyers said that while Keith is talking to you, it is obvious that it is really important to understand that it is only influenced in a way that you can not see a few days.
Barrett describes losing his self-confidence, such as his ability to interact with someone and struggles with anxiety and unrest. The sound and distraction of large social events can be large, and it often runs with dogs, is used mostly for the use of movies.
"Why do you pay for the other day you forgot?" Barrett Quipes, but it's boring because it says that he will not try to think about his grandchildren and he will be as it will grow.
They have become a zealous advocate for more than 16,000 Canadians under the age of 65 with young early dementia and to find definitive tests for Alzheimer's disease and effective treatment in the future.
Alzheimer's progressively destroys brain cells. With mild illness, it passes through the middle stage, while patients eventually need help with basic activities like bathing in the late stages, when they are unable to finally speak and need 24-hour care and eventually the end of life. According to the society, how long each phase is going on is different for everyone.
Barrett is on medication that can improve its symptoms for many years but in small amounts after difficult side effects.
"At least it gives you a little hope," he said.
The mayor listens to the kindness she shares when she shares that her husband lives with Alzheimer's and it is certain that she may possibly take her away from him.
She has a tattoo on her wrist who hopes she will increase awareness about dementia and start a conversation that will help change the spark. It is a dori, a nymph and a fish that finds an unforgettable formula in its present form: "Just keep swimming."
Meyers said, "We want people to think positively about us." "There is still a general answer, 'oh, I am very sorry.' I do not mean I am not. We do not want this, but it is here so we can face it."
For more on the campaign, visit ilivewithdementia.ca.